How I Built a Financial Safety Net With Chronic Illness and Remote Work
I didn’t set out to get rich. I just wanted to feel safe.
Building a financial safety net with chronic illness wasn’t about luxury. It was about relief.
- Relief from overdraft notices.
- Relief from wondering if pain would hijack tomorrow’s paycheck.
- Relief from the guilt of “wasting” a day because I was too inflamed to function.
When you live with chronic illness, unpredictability becomes the norm. Flare-ups don’t care about deadlines. Fatigue doesn’t respect ambition. That’s not laziness it’s logistics.
What I needed wasn’t more hustle.
What I needed was a floor.
A system that didn’t collapse every time my body did.
This is how I built that floor and how you can start building yours.
What I Mean By a “Financial Safety Net”
A financial safety net with chronic illness isn’t about stockpiling millions. It’s about building a floor you can stand on when life pulls the rug out.
Here’s what mine looks like today:
- Monthly burn rate: under $4,500
- Emergency fund: 6 months ($27,000+) in an ETF, built through my TFSA on Questrade
- Automated savings buckets (Tangerine):
- Car Fund → $41.67/month
- Travel Fund → $83.34/month
- Future Dog Fund → $20.84/month
- Multiple income streams:
- Remote tech work
- Rental income from my home
- Maybe (someday) this site
- A no-guilt budget: one that flexes when I need rest
It took five years, from 30 to 35, to build. But the seeds were planted when I hit a wall at 29.
The Flare-Up That Changed My Mind
At 29, I lost two full weeks of work to a flare so severe I could barely walk.
I had to burn PTO, which killed my travel plans for the year. It wasn’t just a canceled trip. It was a canceled piece of myself.
Curled on my couch, staring at that cancellation email, I made a vow:
Pain would never hijack my future again.
That moment turned money from an afterthought into a lifeline.
Step 1: I Changed My Environment First
Forget spreadsheets. Forget apps.
I started by defining what safety felt like, not what it looked like on paper.
For me, safety meant:
- I could miss a month of work without panic.
- My home wouldn’t exhaust me.
- My bills wouldn’t spiral if I had a bad flare.
So I downsized.
Canceled subscriptions.
Found a remote-friendly job.
Created a living space with fewer stairs, better ergonomics, and less chaos.
Budgeting got easier when my life stopped bleeding money.
Step 2: I Built a Budget I Didn’t Hate
Traditional budgeting always felt like punishment. I’d open a spreadsheet, get overwhelmed, quit.
The breakthrough came when I realized I wasn’t “bad with money”, I was burnt out.
So I switched to a budgeting app that worked with my brain.
For me, that was YNAB (You Need a Budget).
What changed:
- Found $100/month in forgotten subscriptions.
- Shifted focus from “decade goals” to “next-dollar choices.”
- Replaced shame with clarity.
Even saving $25/week gave me breathing room. Not “retire early” peace. Just “I can exhale this month” peace.
Step 3: I Automated the Money I Wanted to Keep
When pain flares hit, decision-making collapses. So I stopped relying on myself to remember.
Now everything’s automated:
- RRSP contributions: long-term tax-advantaged savings
- TFSA ETF buys (via Questrade): monthly cost-averaging
- High-interest savings transfers (Tangerine): weekly deposits
Automation wasn’t about performance. It was about relief.
Relief from forgetting.
Relief from sabotaging myself in a flare.
Step 4: I Embraced “Boring Money”
In my 20s, I chased hype: penny stocks, day trading, quick wins.
It burned me.
In my 30s, I chased calm.
My new mantra:
“Boring money keeps me calm. Calm lets me heal.”
What boring money looks like:
- ETFs instead of stock picks
- Index funds instead of crypto hype
- Long-term consistency instead of daily rollercoasters
It changed my relationship with money.
I stopped comparing myself to friends.
I started comparing today to my last flare.
Step 5: I Protected the Floor
Today, a flare doesn’t sink me.
That’s the point of a financial safety net with chronic illness.
- Emergency Fund = Wall → protects me from job loss or medical costs
- Budget = Map → shows where I’m going without shame
- Multiple Streams = Stability → job, rental, site
- Mindset = Foundation → I’m not behind, I’m building differently
I don’t need to win a race I never signed up for.
I just need not to drown every time life gets hard.
The Chronic Illness Safety Net Framework
If you want a step-by-step system, here’s mine boiled down:
- Track Burn Rate: Know your real monthly cost of living.
- Cut the Leaks: Cancel subscriptions, downgrade plans, simplify bills.
- Automate One Buffer: Start with $25/week into a savings account.
- Build 1 Month of Safety: Then scale to 3–6 months.
- Diversify Income: Remote-friendly jobs, small side hustles, rentals if possible.
- Invest for Calm, Not Thrills: ETFs > Hype.
- Review Quarterly, Not Daily: Reduce stress, stay consistent.
If You’re Just Starting Out
Start small.
- Open a high-interest savings account.
- Automate $5–25/week.
- Use YNAB or Mint to see where money leaks.
- When you hit $500 saved, open a TFSA or Roth IRA and start with an ETF like Vanguard’s VOO or iShares’ XIC.
- Check in quarterly. Not daily.
Final Thoughts: You Don’t Need More Hustle. You Need a System.
If you live with chronic illness, let me tell you:
You don’t need to grind harder.
You need a system that holds even when you collapse.
Start with one buffer. One automation. One decision today that makes tomorrow easier.
You can feel safe again.
Not because pain disappears.
But because your system keeps working, even when you can’t.